A blog about LIFE...that happens to include Down syndrome!
I mentioned in a previous post that we were quiet about Everett’s diagnosis on social media for about a year. To add to that, I’ll have to confess…I took a long social media break during those early days. It was just too hard. I was …
We didn’t announce the fact that Everett was diagnosed with Trisomy21 until he was about a year old. We told friends & family, but we let our social media peeps figure it out for themselves over time. I believe I made it FB official 2 …
Looking back, I had an early fear that quite frankly was a little ridiculous. After Everett was born, I immersed myself in any and all research related to Down syndrome. I learned quickly that kiddos with DS often are shorter and smaller than their typically …
I get a lot of praise from others who describe me as a stellar parent, which means a lot to me (thank you to those who have said that). Being a good parent falls right under living a Christ-like life, in my book. But I’ll …
For the first year of Everett’s life I spent a lot of time and emotion worrying about him. At night as I was falling asleep, I would worry. When I woke up, the worry would begin again. And I would worry and pray all the …
Bible class is a big deal to us, especially for our children. I have the greatest memories of bible class, VBS, youth group activities & church camps, from when I was growing up. I’ve always hoped and prayed that both of my children would build …
The (as in “THE”) greatest fear I had for Everett after we learned he had DS, was that no one would accept him for who he was. I worried that anyone he encountered (friends, family, acquaintances, and strangers) would not fully accept him because of …
Read the enclosed link which features a letter authored by my dear friend and fellow Rockin mom. Let me tell you…from my experience (and the experiences of others), many healthcare professionals know very little about Down syndrome beyond the diagnosis. And unfortunately, many of these …
I distinctly remember the medical bills rolling in after Everett was born. Geneticists, hospital bills, specialist co-pays, pediatrician visits, home healthcare, lab tests, you name it. We also decided early on that Everett would attend Kinderfrogs at TCU, no matter what the cost. So obviously, …
Vic and I waited so long to be parents. All we wanted to do was be mom & dad to a sweet baby and join in on conversations about parenthood. Shortly after E was born, I recall hearing a few healthcare workers refer to him …